So I saw a post that was advertising a event in a local library all about autism. I thought great, the list of attendees would be interesting to have a chat to and learn more about myself and my autism. Then I saw the fatal comment ‘…. support our children and families’ – and I’m back to square one.
When it comes to autism we only seem to be able to support children and their families, when you become a adult we all lose the ability to understand it. It’s like it’s a foreign condition that we’ve never seen before.
When it comes Aspergers, for me, it’s a whole different story. Aspergers seems to fall between severe autism (maybe can’t feed, dress, generally look after themselves – needs 24 hr care and assistant) and not having autism. I have Aspergers and even though I seem to function somewhat normally I still have the struggles of autism yet this middle ground isn’t catered for.
I don’t need to be placed in respite or need a carer but I also don’t need to be left alone and ignored. I don’t need 24 hr care or assistant but I need someone to help me cope with my social inabilities. It’s like I can’t be autistic because I’m not severe enough for people take take it seriously. Yet it’s the hardest thing for me to live with.
Why aren’t there events for advice for those of us who struggle through with our autism. For those of us who fall in the middle. For us who just about cope in life as our autism can ruin parts of life for us but from the outside people think we’ll ‘get by’.
When I had my autism assessment, the psychiatrist could see that I was supported by my husband and that even though I struggled we worked together to get through life. That bit is fine I just need help understanding how my autism is apart of me and maybe some professional guidance … he offered him a respite leaflet!
These are my personal opinions, this is how I’ve formed my view on it from other people’s opinions, trying to access help etc. This is slightly random post as I saw the Facebook event and just got sad.